Sunday, May 13, 2012
My latest doctor appointments.
I've had a great week. I went to Nashville'TN to Vanderbilt Children's Hospital on Tuesday and Wednesday for my doctor appoints. I seen my geneticist and neurologist. My geneticist is still concerned about how rapidly my disorder is progressing. So he is going to look at some of my earlier test that were done when I first received my diagnosis, just to see if there is anything that might have been missed. I will be going back to Shriners Hospital in Lexington, KY to get the casts removed from my legs and then another set put back on. I'll be wearing them for another 3 weeks. We are hoping that this will help stretch my tendons so I can walk a little easier.